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11 Stereotypes About Genital Herpes

11 Stereotypes About Genital Herpes

People with STIs, including herpes, face discrimination, like any other marginalized group does. The ability to openly share STI status is a privilege. Many STI-positive people face harassment, judgment, or rejection for their status.

But much of this discrimination is fueled by harmful stereotypes about the kinds of people that have genital herpes. But these stereotypes are rooted in misinformation and scare tactics that are not representative of the reality that people living with genital herpes (like me) actually face.

Here are eleven.

1. It’s Not That Common

Genital herpes is one of the most common STIs in the United States.

About 1-in-5 or 1-in-6 people in the US has genital herpes.

That means that there are over 51 million Americans with it. Chances are you know someone with it, if you don’t have it yourself.

There is also a huge racial disparity, according to the most recent CDC data, with more than 40% of non-Latinx Black women diagnosed with the infection, compared to less than 20% of non-Latinx white women.

If you add the number of people who have both types of the Herpes Simplex Virus, HSV-I (which is characterized mostly by oral outbreaks, commonly referred to as cold sores) and HSV-II, the number is even higher.

What this means is that if you’re someone with genital herpes, you are absolutely not alone.

2. You’d Definitely Know If You Had It

Many people who have herpes don’t know it because not everyone that has herpes gets outbreaks. Many people are asymptomatic or have mild symptoms that could be mistaken for an ingrown hair or eczema.

One estimate puts the number of people unaware of their HSV infection at 87%. That number accounts for both HSV-I and HSV-II infections, but it’s a staggering statistic.

I was completely taken aback by my diagnosis because my symptoms looked nothing like the images that come up when you Google “herpes.” When people think of herpes, they think of blisters.

But I didn’t have blisters. I had achy skin (which I discovered was nerve pain) on my butt and labia, tingling and numbness in my vulva, and sore, achy muscles in my thighs. These are what’s called prodromal symptoms, and they’re hardly ever talked about when herpes is discussed.

With symptoms looking so different for everyone that has HSV, it’s common to not know you have it.

Furthermore, as evidenced by the racial disparity in infection mentioned above, access to testing and information is not accessible to everyone.

Having access to information about STIs, how to prevent them, and barriers to facilitate safer sex is a privilege that not everyone has, and this increases both the likelihood that someone could contract genital herpes and that they could have it and be unaware of it.

3. There Is a ‘Good’ Herpes (Oral) and a ‘Bad’ Herpes (Genital)

There’s this tendency to create a hierarchy with herpes diagnoses – that HSV-I is somehow “less bad” than HSV-II. And, I’m sorry, but that’s total crap. Here’s why.

As we’ve already talked about, there are two types of the Herpes Simplex virus: I and II. HSV-I usually affects the mouth (cold sores are usually Herpes Simplex I), and HSV-II usually affects the genitals.

However, both types can be transmitted sexually (through kissing, oral sex, or skin and genital contact). While barrier methods (like condoms or dental dams) can reduce infection, they don’t eliminate it, and it’s possible to spread the infection even when no sores are present.

And HSV-I is not limited to the mouth area, nor is HSV-II limited to the genitals. So, HSV-I can affect the genitals, and HSV-II can affect the mouth. It’s also possible to be infected with both types of the Herpes Simplex virus.

So this shame hierarchy we’ve created is a bunch of bull and we need to stop doing it.

4. Herpes Isn’t A Big Deal (Or, Conversely, That It’s a Huge Deal)

Of all the STIs to have, genital herpes, while annoying, is generally fairly harmless.

It doesn’t affect fertility, it won’t evolve into cancer, and it won’t kill you. So while it can be a literal pain in the ass, it’s not particularly dangerous.

That being said, it can be a big deal for folks who are immunocompromised. For example, if a pregnant person contracts HSV, it can be lethal for the fetus.

Or, if a pregnant person already has HSV prior to pregnancy, they might experience lengthy, chronic outbreaks during the period of their pregnancy, like I did.

5. People (Particularly Cisgender Women) Who Have HSV Must Have Slept with Lots of People

This is just wrong, right? Like, we know it’s possible for people to have slept with one (or zero) people have contract genital herpes, correct? Great.

But let’s delve deeper than that, shall we? Because this myth is rooted in sex-shaming and a whole lot of misogyny.

Because it literally shouldn’t matter if someone got herpes and had sex with one person or 100 people. When I say we need to break the stigma, I mean for everyone that has it, and not just because some people get it from their first partner.

These narratives exist in the same sphere as our ideas about survivors of sexual violence. We’ve created these non-existent “perfect victims” to determine whose assault is valid and who deserved it based on behavior they were or were not engaging in.

Similarly, we see this when it comes to talk about how “anyone” could have an STI, “even people who have only ever had sex with one person.”

There’s all this speculation about how they should have kept their legs closed or waited for marriage or used a condom. And if they did all of these things and still contracted an STI, then we should feel sorry for them. And they’re the reason that we shouldn’t judge people who have herpes – not that slut who was being slutty (pshh, serves them right, because what did they expect?).

But reproductive justice looks like being here to support someone if they have an STI. Period.

And IDGAF what the circumstances around someone contracting that STI were.

They deserve love and care and to talk about their truth without shame because they are human and they are wonderful and they have nothing to be ashamed of.

6. No One Will Ever Want to Have Sex with Someone With Herpes

Well, if this were true, there’d be a whole lot of people not having sex.

And while it’s true some people will decide not to engage in sexual activity with someone with genital herpes, it doesn’t mean that no one will.

Most people that hear a genital herpes diagnosis and balk are products of the same culture of misinformation and stigma that this article is trying to combat.

And while disclosing your HSV+ status to a prospective partner can be scary, if you know you have it, it’s not an option not to say something, even if you don’t have an outbreak.

Informed consent should be the cornerstone of every interaction, and your prospective partner has the right to make an informed decision about whether or not to engage in sexual activity with you – and that requires that person having all the information.

Sometimes just educating someone about the reality of the infection can be all it takes to make them realize that it’s okay. Sometimes, it’s not. And that’s okay, too.

If someone chooses not to have sex with you because you have genital herpes, then they aren’t worth pining over, anyway. To the right person, it won’t matter.

7. You Can’t Give Birth If You Have Herpes

While genital herpes might complicate pregnancy and childbirth to some extent, it doesn’t mean that someone with HSV cannot carry a child.

As mentioned above, it can be dangerous for a pregnant person to contract a new HSV infection. And it can make pregnant people, who are immunocompromised, susceptible to more severe outbreaks during the course of their pregnancy.

As someone who has herpes, I was terrified about pregnancy. And it did, to a large extent, make my pregnancy extremely uncomfortable in a lot of ways.

But I stayed in communication with my midwife and, eventually, we found a dosage of medication that suppressed my outbreaks. I was able to have a safe vaginal delivery for my baby.

And if I had had an outbreak during labor? I would have had a C-section and, hopefully, still successfully delivered my baby.

So while genital herpes may complicate pregnancy, the two are not incompatible.

8. Having Herpes Is Something to Feel Ashamed About

Did you know that, until the 1970s, there was no stigma associated with genital herpes?

The stigma appears to have been manufactured by a pharmaceutical company to sell their newly developed antiviral medication.

From Project Accept:

The stigma is a comparatively recent phenomenon and appears to be the direct result of a Burroughs Wellcome’s Zovirax pharmaceutical marketing campaign in the late 1970’s through mid 1980’s… The Burroughs Wellcome advertising campaign was designed to stimulate demand for Zovirax by raising patients’ concerns about the social consequences and implications of infection and emphasizing that the drug could reduce outbreaks and transmission.”

This, combined with a 1982 TIME cover article calling herpes “the new scarlet letter,” and painting it as a consequence of “the new sexual revolution” had the effect of creating a cloud of shame around herpes diagnoses.